After thinking we'd missed out on tickets to see Public Service Broadcasting, D heroically managed to both secure them and register us as a disabled person and carer so we could get to the crip section of the venue. He'd been there before and I hadn't, so he really was a carer.

The most exciting thing for D was that the venue which had previously been notorious among my friends for its terrifying stair-climber to get wheelchair users up its many many stairs now has a lift/elevator! (We were able to get out much more quickly and easily than fighting through the whole crowd by going down those very stairs so I still got to see them and, yep, would not like to navigate them as a wheelchair user in any way. I was very glad I didn't have to walk up them on my dodgy ankle!)

The most exciting thing for me was that the crip area had a drinks runner! Each pair of seats had a little leaflet on it with a few accessibility basics and a menu of what we could order from the bar. co2 numbers were high enough that we wanted to keep our masks on generally but okay-ish enough that we could just about feel okay getting one drink, so we did and it was super cool. Of course I usually have a similar system that involves just sending D to the bar! But it was so nice that he didn't have to do it either. Ethan the drinks runner was quick and cheerful and graceful carrying liquids around in the dark and didn't seem at all perturbed by his job, which helped me feel good about asking him to do it for us.

I tried hard to learn the two most recent PSB albums in about a week (and a week when my phone wasn't working well at anything, including playing music, and also one where I had too many work meetings to listen to anything) and I'm glad I did because very reasonably we heard more of them than we did the three I know -- which I think got about five songs between them.

After a few songs from The Last Flight and at least one or two from Bright Magic, a familiar chord filled my ears and my heart and transported me back to 2018, seeing them at Blue Dot with my friend Bethan and then buying myself a t-shirt as a treat to myself after finishing my first year of uni. The t-shirt has "I believe in progress" written above the three versions of their increasingly-abstract logo from the first three albums -- very clearly a radio telescope at first, it because a sufficiently abstract series of lines and angles in the same shape that it could be animated as pumping water out of a mine in the video played at their gigs when the Welsh coal-mining album was new.

When I wrote about their music like this and looked like this:

Younger me, with an undercut, listening to music and wearing this t-shirt.

So, so many things were different then.

But some of the changes really have been progress.

The thing I couldn't talk about yet the other day is that Gary has the same problem with his eye that he did before, but worse.

D had to take him to the vet all by himself, and he put us on speakerphone while he was there. MB and I were sitting across the table from each other, trying to eat soup for lunch even though neither of us was hungry and it was almost four o'clock. She was too ill to go with Gary; I'd just gotten out of a meeting I couldn't skip or postpone because of this intense time I'm having at work. When the vet suggested referring Gary for the operation, I tried to rest my hand on hers but she grabbed mine and we just sat there clutching each other's hand for the rest of the call. It was horrible. I worried she'd blame herself for not having caught this one as early as last time, but she was just sad that Gary was suffering and worried about the future possibilities.

The possibility that isn't the operation is the eyedrops again, "but much more often," I remember the vet saying. Three different kinds now, a total of eight times a day.

Five times a day was grueling enough. This seems to have crossed some kind of threshold for Gary where he is just not okay all the rest of the time either. He's incredibly reactive: barking a lot even when no one is near him now, trying to bite sooner and harder... so it's not just when we're doing the drops, it's affecting him and thus us all the time.

The combination of him being like that and MB being in such poor health lately means I'm having Gary in my room every night, which is sometimes a trial in itself -- last night he woke up from a sound sleep to bark and lunge at me when I moved at all, even though I was just trying to get my pajamas and put them on and stuff, things that were nothing to do with him; I was not sure how I would safely get into my bed for a while, a rare moment of "I am not sure how to handle this Gary situation" for me -- and also means D and I have had to sneak in our cuddles where we can; a couple of naps and one time when I got up to pee about the time he was going to bed in the spare room, we decided I could join him (Gary was long asleep in my bed by that point and did not seem to miss me). I'm feeling even more touch-starved than usual, which is not helping with the mental and emotional toll this is taking.

And we quickly determined that D couldn't go camping next week either. It's too much to ask MB to do the eyedrops all the time for that many days. He's really sad about that and worried about letting down someone he loves, so that's no fun either. MB was sad she wasn't well enough to help with the vet visit (poor D ended up with bites on his fingers just from trying to get Gary in the car). I was completely overwhelmed with work to the point of being unable to process this, just feeling small and alone.

Thursday was also the day that an online friend had to say goodbye to her dog, another elderly terrier who was more similar to Gary than any dog I have ever known of; it's partly how me and this lady became friends, just saying "my dog does that too!" at each other. I've never cried so many tears for a dog I never met as I have for Sterling, because I do feel like I met him. So it was a sad day for me anyway, and an especially rough day to get difficult news about Gary.

Still, always, moments of grace: this morning I didn't wake up with his butt in my armpit like usual when he shares my bed, but to such photogenic snuggles, and with him being happier than usual to have my arm wrapped around him. Even when he's barking and aggressive it's so clear that he's trying so hard to be a good boy, and I am more convinced every day that he is the best boy. Gary's head rests on my side; my arm is curled around him. His eyes are mostly closed and he looks very peaceful.

I've had one or maybe two professional haircuts since February 2020. The last (or only?) one was early this year.

So it's a big heckin deal to get one. But a reported friend of mine who lives nearby reported that she'd found a barber that would give a "men's" haircut to anyone who wanted one (shockingly difficult; the place across the street wouldn't apparently, and I've always had trouble with this too).

So I tried it out today and I love it! The guy wore a mask, worked around mine, gave me a gay haircut, and it was very affordable! My friend was so right to recommend it.

This must be the most masc haircut I've had, and the whole experience was so unremarkable and...also masc I guess. It made me so happy.

I've gotten my hair cut at barbers for 15 years or so but it's always been under sufferance, a big deal: a lesbian friend took me to a barber she'd always had good luck with and the guy did a nice masc haircut for her but then, when I asked for the same, he made mine "more feminine" as he called it after he'd finished, not having mentioned his decision to do so until then. One guy at a barber near where I used to live would do my haircuts but his colleague wouldn't, he was so uncomfortable any time he saw me and he'd tell me to come back if the other guy wasn't there.

My anxiety is at a high point lately, as you all can tell, and I nearly didn't do it. A new place, new people, maybe they'll Talk to me, maybe they'll be weird... I almost didn't do it, after a terrible night and a tough day of sleep-deprived work.

But I'm glad I made myself go. At a time when I feel like I'm fighting with my body over everything (food, sleep, self-image, you name it), it's good to have something nice happen to any part of my body for any reason. It was nice to be touched in a practical, professional way (makes me think of massage). It's nice to smell good! I love the smell of the stuff in my hair.

[131/365]

May. 11th, 2022 10:25 pm
I resented the interview all day until it started, at 2pm. I didn't have quite so much physical anxiety symptoms as I'm used to, but I still only ate breakfast because [personal profile] mother_bones gently but firmly insisted, and my hands were sweaty and shaking, and my mind was racing and unable to concentrate.

I hadn't been able to do much interview prep yesterday when I got home form work as I'd hoped to, so it all happened this morning.

I think it went okay, but gosh it was a lot. An hour's worth of interview-task -- the kind of thing that I was used to a small group of people working on and bouncing around an e-mail list over the course of a week, I had 45 minutes to do myself -- and then an hour's worth of competency-based interview is a lot. I hate "tell us a time when you..." I can never think of a time. I did okay most of the time, but had a couple of flimsy answers.

At first I thought my webcam wasn't going to work at all (turned out my anxiety about being late meant I'd tried to join the Teams meeting early enough to figure this out and have time to restart my computer, which fixed the problem). For this I put on a tie?! I told myself. I took a selfie to prove if only to myself that I had indeed dressed up.
Me in a shirt and tie!

Afterwards [personal profile] diffrentcolours and I decided to go for a walk to work off some of my adrenaline-crash nervous energy. Then we realized we could walk to a pub. We meant to only stay for like one drink but had three and then got takeaway dinner and then went to a differnt pub for another pint.

It was lovely, a great evening to sit out in the sunshine and just be glad that I had gotten through the day without making myself cringe.
Our post-vacation LFTs were clear, yay! So [personal profile] diffrentcolours and I went out for drinks with a friend, at a nearby place we could bike to and sit in the sun.

"Has she seen you since you've been Erik?" he asked me before she got there. I wracked my brains, barely able to speculate whether she'd seen me since the pandemic started. I was pretty sure she hadn't...and then I remembered I'd only been Erik for a year! So almost surely not. She confirmed that she hadn't seen me since I'd been Erik.

We had such a fun time. Our friend had to leave a little before we did, and not long after it was just the two of us sitting at the table, a stranger came outside to where we were sitting and said she wanted to take a photo of us because we looked so cute. She took the picture on my phone and then went away again. Leaving me wondering...what is this? why so good and pure? I feel like I dreamed it? But I have the photo on my phone!

I thought she wanted a picture, and I was like "only if you send me a copy" and she said "give me your phone!" and I was so surprised! She got nothing out of this! She just wanted us to see us like she saw us I guess!

Here's the photo she took.
me and diffrentcolours looking cute

It's extra touching for me because, despite having thought the other day our second anniversary is coming up..., I realized it's actually our third anniversary that's coming up, because we were dating before the pandemic. Because it took two occasions of getting really drunk, a month apart, for us to sufficiently fess up to and communicate our feelings for each other for us to end up dating; one was early-middle March and one was early-middle April so I feel like we're right between them now (if we have an anniversary, it's Good Friday; that was the second of those two accidental drunken sessions!) and getting a little drunk but not having anything big to talk about feels like such a nice indication of how far we've come as a couple. I'm still constantly aware when we hold hands, when I see him smile, when we spend time together, how happy I am that this is working out.

I shared the photo on social media and the consensus seems to be that we were visited by an angel, a patron saint of the of photographic arts, that this is a gift, and that we're really gay. I do feel like this is such a gift.
The Minnesota Twins retired Kent Hrbek's number in 1995.

Each baseball player wears a one- or two-digit number on their jersey, and usually the number is recycled to a new player when the one who wore it retires or leaves the team. But sometimes the player is very good and with the team for a long time, so the team and the fans end up associating the number so strongly with that person that when they retire the number is retired too. This means no player for that team wears it again, and a big version of the number is displayed in the stadium so everyone at the ball game can see it. There's a ceremony for retiring the number, which takes place at some particular game.

The Minnesota Twins retired Kent Hrbek's number in 1995, which means I was thirteen years old. I don't know why we went to that game: was it intentional? We only went to a couple Twins games in my entire childhood; one to see the Mariners because Ken Griffey Jr. was my brother's favorite player (because his baseball glove had Junior's fake-signature in it, but I think really because he was always a fairweather fan who liked winning teams which the Twins certainly weren't by this point), and once I got to see Jim Abbott pitch, which it turns out was this game. Nothing else about that box score sticks in my mind, even though I got to see my beloved Kirby Puckett play.

All I remember, and I remember it distinctly, was the replica Kent hrbek jerseys being given away to "the first 10,000 kids 12 and under" which I was worried about because I was thirtee but I desperately wanted a jersey. I adored Kent Hrbek as much as I did Kirby Puckett; these two were giants in my tiny life, making me think by the time I was nine that winning the World Series was a rather unremarkable event that was going to continue to occur at regular intervals through my life, since it had already happened when I was five. (It hasn't happened once since, and I'm thirty-nine now.)

Baseball had broken my heart by going on strike the previous year. As a kid I didn't understand the specifics of the situation at all, all I knew was that one of the stalwart features of my summer could suddenly be taken away. To go to a game the next year, to be reminded of Herbie and everything he'd done that made me love him (and that this point the love was such that I truly believed he hadn't pushed Ron Gant off the base) back when I was a kid -- this is how I thought about it when I was 13, "back when I was a kid" -- back when baseball was reliable and good and exciting, was such a treat.

Turns out I needn't have worried about being too old; no one was checking non-existent kid ID to see if I was 12 or under. Walking through the turnstiles next to my little brother might have helped too; we were clearly Kids. The girl handing out the jerseys I remember as not being that much older than us, a teenager just whipping jerseys out of a box, all the same size, barely looking as she grabbed them out of a big box as crowds flowed past.

I wanted to wear the jersey over my normal t-shirt at the game, but my mom didn't allow it. She said it had to be "kept nice." I didn't know what'd happened to it after we got home that night. I was frantic about it for a while. I rooted through my closet and under the bed but everything was so neatly organized, so excruciatingly familiar, and none of it was the Hrbek jersey.

It was one of those things I'd randomly think about while I was trying to fall asleep at night:
Why had it been put away? It was special to me but it didn't have any monetary value or anything, a shirt like literally 9,999 others, with nothing special about it, the occasion of the number retirement was only connected to it in my mind. To anyone less obsessed it would've just looked like any replica t-shirt, it could've come from Shopko or Scheels like my other Twins stuff. As a kid I was used to outgrowing my clothes all the time and it hurt to think that this would join them; this thing from when I was a kid I'd one day outgrow and never be able to make use of.

Eventually I learned it was in the wicker chest, but that was no help. This collection of things my mom had decided to keep for me since I was a baby was kept in my parents' closet, no room for it in my own tiny room. And even if I did sneak in and find the shirt, amidst the piles of weird old baby stuff and things I'd made in school and clothes carefully folded in tissue paper which my mom always believes will keep clothing from getting creases in it, what could I do with it? It's not as if I could wear it without my mom seeing.

What did I want it so badly for anyway? I couldn't even articulate that to myself really. It was special because it was lost, and it was mine, and Kent Hrbek was special to my childhood, baseball was special. I just wanted to see the thing again, wanted to touch it.

But there it stayed. For years, as I grew up and moved away. It stayed there for twenty-four years and I never saw it, never touched it. But I kept thinking about it. I caught homesickness and nostalgia like a disease when I moved to the UK, and this seemed somehow emblematic of everything I was wistful for, everything it hurt to remember and do without.

Finally a couple of years ago, my mom, thinking toward eventually having to move off the farm and out of this house they'd lived in for longer than I have existed, wanted to go through the wicker chest with me, see what I wanted to keep and what could be given away or thrown away. I had little idea of what was in there and didn't remember or recognize much of it. The only thing I was absolutely sure was there, the only thing I really cared about, was the Kent Hrbek jersey.

When we unearthed it, it was covered in weird brown stains and the lettering, screenprinted with what was likely to be no special care, had faded and and flaked. It broke my heart a little to see it like that, and to think of how it'd just sat so nearby moldering when I was nearby and pining.

My mom treated the stains and washed the shirt for me. I packed it with my other clothes, the clothes I actually wore, in my suitcase and took it home as if it were a normal shirt. Not knowing what else to do with it, I put it in the drawer with my other t-shirts when I unpacked, as if it were a normal shirt. But it wasn't; I was scared to even try it on. It looked pretty big for something tossed at even a surreptitious 13-year-old, but I'm so used to being too big and too fat for everything. Anyway, would I want to wear something that was still flaky and had the lightened-but-obvious brown stains on it?

I moved it to a new drawer with my t-shirts a few months ago, and wondered again what to do with it. I always figured it was a decision I could make later. But then this morning, amidst a new and worsening depression, having already rejected my first choice of outfit and even my second choice of trousers, I was sinking into a feeling of being too big and the wrong shape for all of my clothes. Digging through the t-shirt drawer, I don't know why I thought it was suddenly the time to try on the Hrbek shirt, but it was.

I put it on and I actually loved it.

Maybe this is a story about appreciating things while you've got them, maybe it's about how they're there for you when you least expect it, but I don't really have a neat moral to tie this story up with. I just like this picture. I wore the shirt to work today and it's tight on me and I wish my body were a different shape but I still felt great.
I got a haircut that wasn't just "shave all the hair off"!

my new haircut

I'd been wanting to go back to "shaved on the sides/back and longer on the top" for a few weeks now. Leaving the sideburns a little longer was [personal profile] diffrentcolours's own suggestion; he made sure I liked them before keeping them of course, but he may have biased my answer by saying he thought they looked cute. I think so too! He told me this is called "deathrock sideburns" (it is, you can google ait and see much more dramatic examples than I could be bothered to grow!) and told me that now when someone asks what my favorite bands are I have to say....oh I can't remember now, something about aliens and The Birthday Party and maybe one more. I said surely the whole point of distinctive haircuts is so you don't have to actually get asked things like that.

I felt so ridiculous for being driven crazy by my hair this last week ro two but when I saw how much hair there actually was on the floor when it was done, I felt more justified. My hair is so thick. This feels so good! Also it's almost long enough on the top I can try putting hair products in it again I think, which would be nice. The queerantine buzzcut has been fun but I feel more me with enough hair for it to stick up and have gel in it.

[personal profile] diffrentcolours took the picture too; I think he did a good job of that as well.
The TV thing ended up being on today, not yesterday. I ended up being one of a few talking heads -- I'm so sad that one of them wasn't Terri from the RNIB, which it would normally have been but she just got furloughed; she's great at this kind of stuff.

As I suspected I was mostly there to walk with my cane and look weird in the shop. The cameraman was super excited about how I looked when I was looking at the shelves and I figured it was probably not how most people look while they're doing it. But then he also praised me for being a natural when I walked; he said a lot of people suddenly become unable to walk like a human as soon as they start being filmed.




P.S. Oh man I nearly forgot the best bit. Andrew's dad called to tel us he'd seen it on the news, and when Andrew got off the phone I asked what his dad had thought of it. Andrew said "His only comment was that he was surprised they didn't call you Holly Hickey."

Apparently he does know that I never changed my name, but he said he thought they'd have called her that anyway.

I'd gone to bed with a migraine by this point so I asked Andrew if that was why this didn't make any sense to me. They didn't ask about my last name at all (so, inevitably, pronounced it wrong in the piece) but they got it, like my first name, from the RNIB contacts. My brain hurt just trying to imagine the mechanism by which they could possibly have discovered that my husband has a different last name, much less used it instead.

This sparked a nice conversation between me and [personal profile] po8crg (who called me after he watched it on TV because seeing and hearing me made him miss me, bless him) about this idea some people have that everyone has a Real Immutable Name, and they might ask you to call them a nickname or something else but the Proper Official Name is still Out There somehow, being objectively the most correct. And I guess my father-in-law (who once nearly accidentally prevented me from going on a family holiday to Greece by booking all the plane tickets with the Hickey surname) has decided what he thinks mine is!
I'd been talking about doing this for months, but I ended up being what a friend said was the second if her friends to do this in just yesterday afternoon alone. I shaved my head.

Easiest thing to manage until I get to see my hairdresser ladies at the student union again. I've put off talking to my parents on Skype partly because l know they're gonna hate it! But I like it, and my social media friends have said nice things about it too.

Here's a photo I took on my way back from work today. It was beautifully sunny but damn cold! Must remember my hats in future.
4 What picture is the wallpaper on the device you’re using right now?



This one (though the other way up, for some reason; it's the south pole so the jets should be at the bottom), of Enceladus, which is a little moon of Saturn and my favorite moon in the solar system (with the possible exception of the Moon, Earth's moon, but that's just provincial prejudice on my part).

It was the background picture on my old phone too, so I've been vaguely looking at it behind my app icons for at least like five years now.
10 What was the last film you saw at a theatre/cinema?

Knives Out, on Tuesday. It's funny: before Christmas, Andrew and I were looking for something nice to do one evening, checked the movie listings, thought this looked potentially interesting but weren't sure, and then I think didn't end up going out at all (probably at least one of us was too sick and/or tired). And then over Christmas it went from this thing that I literally hadn't heard of and knew nothing about to being a thing it seemed like all of my friends had been to see and were raving about.

I'm really glad we got to see it; it's super fun. I turned into one of those people raving about it, when I saw Stuart the next day. He and I are going to go see Cats, that's the plan anyway, so that'll probably be the next thing I see at the cinema.

--

I was sorta debating whether my hair was long enough to need cutting again (the one downside of really short hair is you make really good friends with the hairdresser's because you're there all the time!) but then used it as an excuse to make myself get out of the house today.

For something thatbbarely happened, the results are kinda dramatic: my hair's ended up a lot shorter! Well she asked "#0? Or #1?" when she was trying to remember how long I usually have it, and it's always been #1 but I thought, fuck it, let's do #0 today.

And then I said I wanted it shorter on top (after having let that grow since I first cut off the undercut last summer) but I didn't know it'd be quite this short! I love it though.
"Happy birthday Christmas," Andrew told me, handing me a bag he'd just gone through the airlock we have to make to keep Gary away from delivery people.

In the bag was a Stitch onesie. I tried it on because I was worried it wouldn't fit but it's just about right! And I took pictures because one of my Mastodon friends asked for them.





TThe consensus so far seems to be that I look cute and happy.
Went through all the stuff in the closet in my bedroom at my parents' house today.

It included (among many sad leftovers of my cringeworthy teenagerhood) a box with these two teacups, one from my grandma and one from my mom's grandma.

"That's real gold!" Mom said about one of them but I was more interested in the porcelain itself, which is translucent and beautifully iridescent. My phone camera is usually pretty good but it doesn't do this justice.

The teacups have been re-packed with notes so I remember what's what (the box also featured a sugar bowl, and a serving bowl that came from my grandma's side of the family from Luxembourg; if I ever bring it to the UK, it'll be nearly home).

Most of what I dealt with wasn't so photogenic or so fun. Decisions have to start to be made now and, a lot of the time, the decisions end up having to be to get rid of things.

But not everything.

These teacups have lived in boxes for decades now. I don't have anyone to pass things on to so I intend to use them one day. If they break, they break. That's no sadder than thinking of them languishing in old newspaper in the dark, as they have been.
Before I was a politics nerd...well, I always was a politics nerd (I ran the polling station for my fifth grade class's mock election in 1992) but when I was only enough of a politics nerd to notice signs in people's yards endorsing particular candidates or parties at election time, I never thought that much about how they got there.

In late 2016 in the by-election in Witney (after brave David Cameron ran away), I found out. Because I helped [personal profile] diffrentcolours who was tasked with driving around this rural Oxfordshire constituency to deliver and put up these stakeboards. Lib Dem ones are orange diamonds and say either the name of the candidate or just "Liberal Democrats" and then "Winning Here!" I had fun doing it and a picture that got taken of me holding the sledgehammer that we were using to get these things into the ground (a bit overkill perhaps, but it was what we had available) became one of my favorite profile pictures on Facebook (I'm using it again now that I'm helping out with another by-election).

Today we did not have a sledgehammer, a mallet designed for tent pegs has proved sufficient. We also had a regular claw hammer (the DIY shop we bought it in this morning only had a particularly teeny variety, which to my delight was labeled a "stubby hammer" on the packaging), a lot of little nails, and even more cable ties. Whereas in Witney we had stakes that were already attached to boards, here they needed to be assembled into such. So I tended to do that and then D got them driven into the ground or we cable-tied them to conventient fence posts or whatever.

We didn't take a lot of pictures last time, except for me and my sledgehammer, but this time the routine often finished with one or the us standing in front of the sign and the other taking a photo. Here's one.

cosmolinguist: drawing in black of owl wearing big red glasses.Words on its belly:"it's not about how you look, it's about how you see" (owl)
Me smiling, my hair is shaved on the sides and spiky on the top

At work today, L told me my haircut is "definitely gayer" than the undercut I had before. He then, delightfully, expounded upon this by adding "it's like a combination of a militaryish high and tight and...a pixie cut."

I love that.


I saw Em J for the first time in weeks, which is always so nice. But it was extra nice because she had such lovely birthday and Christmas presents for me!

I got a Moon nightlight, swirly space colored pencils, a planner with shiny constellations on it, and two other notebooks with constellation covers, one that's got a planisphere, a rotating paper disc so you can move it around to see what constellations are visible at different points if the year.

"I thought it might be a good thing to mess with in lectures when you're bored," she said about that, which made me giggle.

The planisphere notebook also has all different kinds of pages: ruled (nice and thin! I never see it thin enough for me), dotted, graph, even some with tessellating triangles.

The space pencils I remember seeing in Fred Aldous and being so excited about them I wondered if Em J had been the friend I was with. But then I remembered that'd been a different friend, Em J just knows me so well.

The other constellation notebook she said she was thinking might be nice if I want to do some poetry like Stuart. She got him a nice leather-covered notebook that he says he's going to read out of next time we go to Spoken Weird.

"Victory"

Nov. 19th, 2018 08:06 pm
I was glad [personal profile] diffrentcolours warned me about the statue before I saw it. He probably didn't think of it as a warning, it just happened to come up in conversation one day: he told me there was this statue of blind World War I veterans outside Piccadilly, walking in a line, each with a hand on the shoulder of the person in front.

It was a very neutral explanation, mentioned because he knows I have an interest in anything about blindness. I only considered it a warning because I was on the lookout for ableism and cripspiration, especially since soldiers were involved.

I was interested to see the thing, but I don't use the main entrance of Piccadilly nearly as often as the other one, so I had time to forget about it before I encountered it.

So when I did, it was first as a nuisance. It's right in front of the main doors. It causes weird eddies in the spacetime continuum as people ebb and flow around it. And worse, as people stop to take pictures of both the statue and the explanatory plaque. Now, fully cognizant of the irony, I'm going to show you a photo I took of it the other day so you can see what I mean (click thumbnail to embiggen):

I took a bad picture here because I was so conscious of how in-everybody's-way I was -- had to be -- to take a picture at all. And I was at much greater a distance than people usually take photos from. You can actually see one or two doing so in this picture.

But all I wanted was to give you some idea of how close to the front doors of the station this statue is. People photographing it thus also tend to be pretty close by. It adds to the eddies and the obstacles. I expected to be in people's way when I was taking my photo because people are always in my way now, not looking where they are or where anyone else is but framing their shot. It's only a matter of time before someone yells at me for bumping into them and ruining their great insta moment with my actual, unlovely blindness.

Knowing I wanted some photos, I'd folded up my white cane beforehand so that...well, I don't know if I wanted to go incognito so that I wouldn't have to worry about "giving away" that I'm not completely bilnd, or so that my cane and I wouldn't end up in other people's pictures!

Honestly, I also didn't want to look like I was approving of the thing (which I assume most photo-takers are and I didn't want them to assume that of me), becuase I wasn't. I trust and hope that the charity that commisseioned it does good work for blind veterans, and as someone who'll never be a veteran I am not going to talk over them, but as a blind person I was pretty unimpressed.

I thought creating a statue that was a hindrance to blind pedestrians was already enough to die of irony poisoning, but on my first real visit to the statue (where I wasn't just hurrying by and cursing the increased chaos outside the station), after a cursory glance at the row of figures, I went over to the explanatory plaque. It is the same color metal as the statues.

And not just the plaque. All the words on it too. I couldn't read them, beyond the title which was a little larger. There was absolutely no contrast to the text. At all.

It was only on my later photo-expedition trip that I had a chance, because (as I said on Twitter this evening) my phone camera has much better resolution than my own optic nerves.

It says
Victory Over Blindness
Joanna Domke-Guyot
Remembering the returning blind veterans of the First World War
More than 3,000 veterans lost their sight as a result of their service in the First World War. Making their way home from the front, they began their journey to rebuild their lives after sight loss.
In 1915 a charity was founded to support them.
Blind Veterans UK, formerly known as St Dunstan's, has continued to support thousands more blind veterans to live independently as they begin that same journey today.

It's not even anything about the statue, just the charity. And what a name! What is a "victory over blindness"? Not being blind any more? Being so good that it doesn't matter if you're blind? Is blindness an enemy to be vanquished in war? I can't think of a reading that doesn't sound ableist, I'm afraid!

There is a Braille version of the plaque too. The best statistics I can find say that fewer than 1% of the two million visually impaired people in the UK are Braille users.

When I got home, now armed with the name of the statue, I googled it. First thing I found was a BBC news page about it that you can't rightfully call an article because most of it's a video (your reminder that pivot-to-video was always based on a lie and sure as hell made the web less accessible) where most of the information is presented as text overlays that are not read out. Even here, blind people are being talked about, not even talked to, much less with. (The only speech is a few disjointed sentences from blind veterans who were at the unveiling or whatever you call it, and that is captioned, so at least our deafie friends can get more out of the video.)

I was also dismayed to learn from the accompanying text that this statue is a permanent fixture now. I hoped it'd be a short-term thing, for Remembrance Day and that -- at least in its current location. I don't mind there being a statue for disabled veterans (apparently this is the first) but does it have to be right goddam there?

I hope people get used to it and I can walk past it without somebody stopping to take a photo. But Piccadilly is the busiest station around; there's always going to be somebody who's just walking past it for the first time. Ugh. (And oh dear lord I hope I never end up in the photos; people would think it was oh so quaint and poignant to have a Real Life Blind Person in the background of their photo of the mythical blind people.)
When I told Andrew I was going to a spoken-word night with Stuart, he expressed sympathy. It made me laugh but I was convinced it was unfounded.

I don't know why, because every other such thing I've been to has had some measure of terribleness in it, but I trusted Stuart to pick something good. And he was going to read a few poems himself, which he'd hardly ever done before and which I was excited to hear; I didn't know them. I've read some of the novel he's working on (it's great and this was before we were dating again so I was under no girlfriendly obligations to say so (not that I'd feel obliged anyway but it does sometimes seem that way to recipients of such praise)) but I was unfamiliar with his poetry, so I was looking forward to that.

And unsurprisingly he was great, but slightly more surprisingly the rest of the open-mic first half was fine too. A loud Canadian addressed a sweary poem to the Moon, somebody condemned pavement (sidewalk, for American readers; normally the word I use and prefer but here it loses the alliteration) parking.

And then the headliner, Ciarán Hodgers, came on for the second half. By the end of his first poem I was determined to buy the book he said he had.

The poem left me in tears because it was about being an emigrant--usually we talk as immigrants, about the lives we're moving to, not where we're from. Obviously half of the details I couldn't relate to at all because I'm not Irish but the other half was like hearing the most perfect version of my tangled, unlovely thoughts.

And then he introduced his next poem by talking about his grandpa dying and how he had to take the first flight back and then I cried more, having of course been in that position myself and knowing I will be again one day for my grandma... I was crying because it's November now and because it'd be All Souls Day the next day.

The poet said he had three copies of the book (though he was happy to take details and post one for anybody else since he considered it his own fault he hadn't brought more copies, bless him) and I was second in line to buy one. "I could feel a lot of love coming from that corner of the room," he said, which is possibly no surprise since Em J had sent Steve to be first in line.

I told him he'd made me cry because I was an immigrant too and he signed the book for me and stood up to give me a hug and a kiss on the cheek goodbye.

It was a magical night all around really.

I definitely want to go back to Spoken Weird again, and I'd recommend it to anyone who can get to Halifax on the first Thursday of a month.

Cane tip

Oct. 12th, 2018 11:35 pm

I got a new tip for my long cane today.

Because I roll mine on the ground (some people tap theirs from side to side, and some other kinds of white cane don't touch the ground at all), the tip wears away. It's taken a few years for this to happen, but I don't use the long cane all the time: the shorter guide cane is enough for me in the brighter summer months when I can see a lot better.

I noticed my cane felt and sounded weird when I first came back to uni. I chalked it up to having forgotten what the surfaces around there are like, but when I looked at my cane I saw it wasn't fit for purpose any more: it had a chunk taken out of the bottom. It didn't roll right and it was making a really bizarre noise, sort of screechy and rattly. It certainly got people's attention when they were in my way and hadn't noticed me! But that wasn't really worth how annoying it was for me to have to listen to it all the time, and also I hadn't appreciated how much feedback I'd gotten from the sound of the cane until it stopped and was replaced by this terrible, useless sound.

Seeing the old and new tips next to each other made me laugh. I couldn't believe mine had ever been anything but the scruffy dirty thing before me today but it must've started out like this new one!

I'm feeling some kind of a way about this, to an extent that surprises me. I guess I think of myself as someone new to this white cane thing, since I only started...three?...years ago? (and a half). And my sight hadn't gotten any worse, it was just my idea about myself that'd changed. I guess it's still changing.

Pictures

Sep. 5th, 2018 09:29 pm
...of almost everything mentioned in this entry (DW gives tiny thumbnail pictures but all can be clicked to embiggen):

Here's me and The Tiniest Kitten:


I tried to get a picture of how little he is but there were so many other kittens around.


But I had fun trying. He obligingly kept looking at me with his intense eyes.

Here's this year's two apples so far. And the teeny evergreens next to the apple trees.




And here's a picture of something I didn't mention the other day because I didn't know I'd get to do it! This is the first time I drove a tractor in about twenty years.

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