Boy review

Jul. 30th, 2025 10:43 am

I got a text from the gender clinic a while ago saying "You are due a mandatory in person annual review appointment," so that's what I'm going to this morning.

I asked D to come with me, which he kindly has taken off work for, and on the bus in to town he said "So what do I need to know about this appointment?" I said I had very little idea myself and read out the text: mandatory, in person, review.

I did this on the phone last year, but all I remember is that that's when I was first told that I'm too fat to get top surgery. I think otherwise I'm very straightforward: I take my T, I don't forget, my GP is good at prescribing it, I'm not too unhappy with any of the side effects. Last year I could say I was doing counseling from them and I was told I was getting near the top of the voice coaching waiting list (though, another year on, I've still heard nothing about that...)

I told D "I think it's just, like, a meds review but for the whole real, not just meds."

"A boy review," he said.

I grinned. "Yeah!" I rested my head on his shoulder and asked "How is your boy?"

"Pretty good," he smiled. "Could do with more sleep."

So yeah, I'm off for my boy review.

Bodies!

Jun. 20th, 2025 08:33 pm

Happy Nystagmus Awareness Day. I wrote a kind of FAQ about nystagmus a while ago.

I had to explain the basics of what nystagmus is to the assessor who did my PIP assessment the other day. (They used to at least tell you they were a physio or a nurse or whatever, now they don't even bother letting on how unqualified they are to be assessing your particular condition.)

Oh speaking of, I got a phone call today, from an 800 number I'd been ignoring for a few days because it never left a message or anything. I mostly answered it by accident today. And it turned out to be from Maximus or whichever shitty entity the DWP have outsourced their assessments to in my region, saying they need more information from me so now I have to talk to them on the phone on Monday! Ugh. I've never had this happen before.

Got a text this morning saying that I need to book a blood test before I get more meds too. Ugh! More needles and more lectures about being fat. Not a fun day for admin relating to having a body!

I introduced my counselor to the "stress bucket" metaphor today.

Some of you may remember it was a Gary thing. I described it here:

The stress bucket is a metaphor about a bucket with a little hole in the bottom. Stress fills up the bucket. The little hole gradually empties it. We learned about what things are good for emptying a dog's stress bucket quicker and also how long the effects of an overflowing stress bucket can hang around.

It immediately made sense to me as someone with chronic anxiety, so while we carried on using it about Gary (it was always so useful), I apply it to myself too. And when my counselor was getting tangled in some other metaphors that reminded me of this, I told it to her. She seemed to really like it and extending the metaphor was useful for us during the whole conversation.

My good little dog, still helping out my brain even now.

It's ME Awareness Day, and my train is running 39 minutes late last I heard, so I took the opportunity to finally read this piece in a tab I've had open so long I cannot remember where it came from. It's a really incredible read about chronic illness and narratives as necessary for access to care, and what hearing from ill people does to those in a position to offer care.

long quotes, from a much longer article )

Had to miss counseling last week because of traveling for work, so I haven't spoken to my counselor since my grandma was still alive.

I feel like I barely got to scrape off the top layer of all the crud that has accumulated in my brain/body since then.

And I'm exhausted now.

The message still just seems to be things are hard for you in several areas right now: family, politics, work... I'm not doing anything "wrong" but I'm doing all I can, I can't do anything more either.

She keeps saying she hopes I get a break. I do too.

I worked right up until my counseling session started (glad it's just a phone call!) and I'll have to do some more work either tonight or early in the morning. I've never had such a poor work/life balance in this job. Even when things were manically busy with the ticket office campaign, I could down tools at the end of the day and not think about it much until the next morning.

I feel like I'm back at uni and it's essay crunch time: that stage where you've looked at your words so much they don't mean anything any more, but also you're not done yet and the only way to be done is to do more work. Somehow.

My counselor and I determined this week that I need a break and for more nice things to happen to me.

But also that I'm too burnt out to arrange them for myself. It feels unfixable. But something's gotta give; it always does.

Gary corner

Jan. 7th, 2025 10:35 pm

Gary has a little corner of the living room now.

In our living room, on top of the storage cupboard, is a framed professional photo of the three of us, me holding Gary, all of us looking at him and smiling, sitting on top of a pink box-folder size box with a scalloped edge on the lid. The box is fuzzy because he loved that texture, he'd have liked to rub his face on this box. Inside are his ashes in a pewter heart with pawprints on it, his favorite blanket, and his leash/harness.

Next to the box is a digital painting of a photo of Gary wearing a bow tie, the one time we got something approximating "clothes" on him, and for just the length of time it took to get the photo. We say it's his "school picture day" picture because that's what he looks like!

Hanging from that frame is a jack russell-shaped Christmas ornament with Gary's name on it, which was taken off the gay tree on my desk where I'd given it pride of place when I decorated it, a few long weeks ago.

There's a small packet of poppy seeds that we were given by the vet hospital, which hag will plant in our garden when it's time to.

And there's a little thing I got D for Christmas which says "home is where the dog is" that was made by a local artist and which I added one of the Gary stickers to (that V made a few months ago from an amazing digital painting of him that they did).

At least two friends have offered to depict Gary, in a painting and ceramic, once we can get them reference photos which is so overwhelmingly sweet of them to offer. So eventually we'll have those things there too.

Now that I've used up all my NHS counseling and am for the first time able to pay for it privately, I can frame this to myself in the funniest ways. Like "After work today I paid a lady £X to tell her how good Gary is." I did, but it was actually so helpful and I'm glad I could do that.

My shoulder hurt so much last night I couldn't sleep and ibuprofen is doing nothing for it.

Which means.

I have to wake up early tomorrow and run the gauntlet of trying to get a GP appointment.

(well at least I'll probably be awake early anyway!!!)

This is a real Old Person injury: I have no idea what I've done to hurt it, how can it be this bad???

Always a good sign when your reaction makes the phlebotomist feel bad!

I don't like crying every time, I'm not even that upset, it's just a thing my body does! I hate having to perform social rituals of appeasing other people around this!

She was very nice but, like, telling me her veins aren't good either and she has to get blood taken from [an unusual part of her body] made me nearly barf and could be triggering for other people so...

The point where no blood has yet been taken is stressful enough, it doesn't feel like a great time to mention that even if her intentions are solidarity.

(Thinking about it after I got home, it was triggery for me too. Particularly for something that happened almost exactly a year ago, which also doesn't help.)

Then they wanted my blood pressure too. The phlebotomist went to get a machine, there wasn't one in the room, and someone else came in with it and did it.

Or tried to.

I've been going to the gym so when she tried to use the too-small blood pressure cuff on me, we both noticed it. it barely velcroed together and when she started the machine, the cuff just popped open like I am the goddam Hulk or something.

She was like "I don't know if we have a bigger cuff...." and I was like what in this whole building?? Fat people just can't get basic healthcare here at all?!

She said "I didn't know I'd be doing blood pressure or I'd have brought my own machine from home, it has a larger cuff."

The only suggestion she could make to get my stupid blood pressure taken is that I make an appointment with her and she can bring it that day!

And I can't even do that until three weeks from now!

So now I have another appointment, luckily no needles, but she's gonna weigh me too for BMI reasons.

I love to have a two-hour meeting that I forgot!

Right after a counseling session that left me feeling wrung out like a dirty washcloth

(in a good way. but oof. OOF.)

When I got a message from my counselor today, apologizing for having to cancel our session this afternoon at short notice, I we a little disappointed at first because I hadn't been able to speak with her last week either (she had something else going on the whole week), but then I remembered that she'd flagged at the beginning of the last session that we only have I wanna say four left.

I'm allowed 16, which is a ton by NHS standards, but it's still not many to deal with a lifetime of fucked-upness. She asked me how I felt about this (I understand that there's going to be a limit because there are a lot of other transes who need this help, but I'm bummed out) and then said before the next session I might want to think about whether there's anything I want to bring up/work on that we hadn't talked about yet.

I hadn't really put any thought in to this and I've been getting by on a combination of "here's what happened this week and here's all the context you need in order to understand that" and lately more filling in some background -- I might have mentioned here but there was one week where I realized that I hadn't even mentioned that I had a brother who died or that I had ever been married, which seemed faintly ridiculous because those are pretty big details about who I am and How I Got Like This.

There's nothing coming to mind in terms of things I'd want to talk about and haven't yet. But I don't want to feel like I am "wasting" the time left.

I have found it really useful to have someone to talk to who Gets It about BMI being bullshit and covid-cautiousness and other stuff that I braced myself for having to argue about or at least explain, and I totally didn't.

Feels like a gift I don't want to squander.

She said she'll be in touch later this week to rearrange, so I have at least a few more days and maybe another week to think about this. I'll try to be more deliberate about it now!

I was almost glad to hear my alarm this morning because it woke me up from an absolutely appalling dream. The kind where you find yourself back among people from your past who've hurt you, and try to explain how they hurt you, and... it doesn't go well. The kind you make notes for your next counseling session about after ruminating on it as you get dressed. The kind that leaves you rattled and tired in ways that last all day.

At least I was dragging myself up into a sunny morning and a gentle work day.

I feel like I sleepwalked my way through work, including ignoring Gary a lot as he squeaked about the other two humans being missing for a couple hours in the middle of the day. But also I fed him and myself and took him out for so many little walks that we were outside when the car returned with our humans and he had his usual charming and funny moments of realization that they were back.

I got a very annoying text saying my testosterone level was too high the last time it was tested, so I am not free yet of needles every couple months (if this one had been okay, I could go 6 months until the next one!!!). I don't even know if the level actually is high; They always tell me the gel has to be applied 4-6 hours before the blood test but my GP only does blood tests in the morning! Sorry I'm bad at waking up at 4-5am to take my fucking meds. I'd never get back to sleep knowing the prospect of needles was hanging over my morning, what a grim day that would be!

I needed a nap after work, and I'm so incapable of napping that this is never a good sign -- it usually only happens when I'm sick! I slept fine (in terms of amount of sleep if not quality of sleep...) so it's frustrating to still be in this state.

I had to be woken up for dinner, struggled to eat it, and have just felt bad this whole time. Somewhat mitigated by a Wednesdoof playing many Doof classics as people get excited for a festival that's an anchor of the Doof calendar.

I'm just coming up to a year on T (a fact I'm only certain of because it's time to renew the year-long prescription pre-payment certificate that I got not long after I started! there's the "HRT date in bio" types and then right at the other end of the bell curve there's me, heh).

And it has come to my attention that there's plenty of joy shared by exogenous-estrogen folks on the social media where I hang out and far fewer exogenous-testosterone types sharing what's good about our hormones for us.

I think there are a lot of reasons for there being fewer of us and less being shared (I've had my own reasons for not talking about every little thing I notice every time I appreciate it). But it ends up meaning that what people hear about testosterone gives an impression leaving us wondering (as a friend put it) "if it's going to turn my skin into hard, cracked, yet greasy leather covered in spikes."

My friend goes on to say "The terfy rhetoric of T being the "bad hormone" that makes you angry and ugly and E being the "good hormone" is not helping. There is not actually a lot of real info out there to counteract that."

I'm always here to refute TERFs.

And to maybe help my future exogenous-testosterone buddies, and celebrate with those alongside me in this.

I'm only one person, every body is different etc., but T has had almost no downside for me so talking about what's good about it is really easy for me to do!

So after a bit less than a year of exogenous testosterone, here's some positives for me:

  • the acne has not been bad at all! I have always had acne, it wasn't "teenage acne" because it never went away, so what I mean is the last year hasn't been noticeably worse than previous ones.

  • plus most of the acne on my chin and jawline seems to have left a new hair in its wake, and I love my facial hair so it feels worth it ;)

  • my skin does feel soft because it's fuzzy! I am growing soft little hairs on my belly and my shoulders and more on my legs and I love feeling them. I stroke my fuzzy jaw all the time as a nice stim.

  • I don't know if my voice sounds that different but, more importantly to me, it feels different. It resonates more in my body. This makes me happy every time I notice it.

  • My muscles are more responsive to exercise and I catch myself finding physical tasks easier than I expect them to be.

  • [genital related thing]

Milestones

Jun. 5th, 2024 09:12 pm

Wow I just got a text saying its time to book my annual review at the gender clinic. Cannot believe it's been a year.

I still so vividly remember getting the phone call offering me that first appointment, I was on a train coming back from a work thing in Wolverhampton, I'd had a very exhausting day where I was very out of my depth, but the news in this call had me excited the rest of the way home.

In other ways, it's so obviously been a long time. This was before the all the work of the ticket office campaign that kicked off a few weeks later. Gary still had two eyes! My parents were despairing of ever finding a house they wanted to move in to. Both my ankles worked the same...

Also, coincidentally, I got a message today saying the counseling team have sent me an email to say I've reached the top of their waiting list. So that's only taken about a year (I'm not being sarcastic there, I'm genuinely surprised it's only a year because the waiting lists for both mental health care and gender health care are measured in multiples of years.)

Had to wake up an hour early to walk (luckily not in the rain! it was pouring earlier) to my GP, over the most inaccessible crossing I encounter, to get blood drawn.

A real Monday morning delight, especially for a needlephobe like me!

Though, now that I think about it, a phobia is an irrational fear and I think "I hate this because my veins always disappear and it takes forever and it hurts and I'm sick of strangers seeing me cry especially because it gets me misgendered" isn't even irrational.

This was my first of three medical appointments for this week. And near the end of our work day [personal profile] diffrentcolours and I made one for Gary. (He's fine, they just need to change one of his meds.) I can't tell if it's a good thing or a bad thing that they're all on different days. Tomorrow is now the only day free of medical stuff.

They're all in-person appointments too! I think today was my second in-person visit to the doctors office; I mostly just talk to them on the phone! But in the other two I'm probably going to be discharged from physiotherapy and I also finally got the replacement appointment for the one booked for the beginning of January, where I expected to be told I didn't have to wear the aircast any more. Wow it feels like a long time ago now! It's been six weeks or so since then.

Physio

Jan. 19th, 2024 10:25 pm

I had my second physio appointment today. (An online chum of mine who lives in Germany recently broke their ankle in what sounds like a similar way: they dislocated and broke it, needed metalwork. But they had their operation that same day (well, late at night I guess) and was seen by a physio a few times while they were in the hospital afterwards and then it's been two or three times a week at their home! Imagine!)

I'd been doing my exercises pretty faithfully, forgetting a day or two (which the physio assured me is no big deal) but otherwise keeping at them. I found them easy and they didn't cause pain or fatigue so I didn't mind them at all.

The physio was really happy with how I was doing. Everything from just watching me walk into her little cubicle at the beginning of the appointment, to my range of motion when she checked that: it was exactly the same in both feet today. Again my left ankle is still a little weaker but only to the extent that's inevitable.

So I've got new exercises to do, and I tried a stationary bike which left me sad I don't have regular access to one because it felt really good on my ankle. I can do bodyweight lunges and squats and stuff at the gym as long as I "tolerate it" (i.e. it doesn't hurt), which is exciting because I'm going back to what we're now calling "trans gym" tomorrow. I confessed I did a little of that last week, just trying out like if my ankle would hold up for a plank or whatever, but the physio said she was fine with me trying that stuff and doing it if it felt okay. Indeed, one of my new exercises is just lunges because they move your ankle all around.

With how well I'm progressing and the fact that we're away in two weeks, I won't go back for a month. And that might be my discharge appointment.

The first thing I heard about my physiotherapy referral is that I had been discharged

The saga! Has a happy ending though: tl;dr I got my first appointment today. )

So anyway, today the very kind [personal profile] diffrentcolours came with me because I was convinced I'd get lost finding the part of the hospital I needed, and indeed we did get pretty lost (the signs were terrible, but luckily people were nice about directing us) but it was also good having him there for the appointment. He took notes of the exercises I was told to do and we ended up in a funny routine where the physio asked me a question, I answered it, and then D and I went off in some kind of familect-laden or generally confusing-af tangent while the phsyio took advantage of this time to type up notes on whatever I'd just told her.

The phsyio had a ponytail and was named Becky and was in all ways exactly what I thought a physiotherapist would be like...except she was awesome about blind stuff! When she called my name of course I bonked my walking cane into something in the process of walking towards her, and then did it again in the short trip down the corridor. She seemed surprisingly (to me, but I guess that's being a physio!) alarmed at this even when I brushed it off as normal for me (and I wasn't hurt at all; it was the cane that bonked into things, my squishy human body was untouched) and said "would you like me to guide you?" and stuck her arm out just slightly in exactly the perfect way for this. She was so proactive and so skilled and so casual about this that I was actually confused -- I do not expect any of this from the general public! -- and figured she had pretty close contact with someone visually impaired. Sure enough: her mum (she later told me that she was pleased at getting to tell her mum that yesterday was World Braille Day because she saw it in a work email and her mum didn't know about this even though she's a braille user; that was cute).

The appointment was reassuring on a number of levels. For one, she told me that all they can do when someone still has foot-jail is get them to like wiggle their foot around a little. The real work starts at the stage I'm at now. I did tell her I'm only unofficially at this wearing-both-of-my-shoes stage, since my followup fracture-clinic appointment was delayed by the holidays and then canceled by the junior-doctor strike, but she seemed totally unbothered about that and basically assured me I wasn't doing anything wrong by abandoning foot-jail based solely on vibes.

She measured my range of motion which has gotten surprisingly good (one of the big reasons I abandoned foot jail is that it was actually hurting me more to not be able to move my ankle than it does to move it) and is now only slightly less than my other foot. She also found that ankle to be weaker than the other one to the expected extent ("otherwise why would you be here?"), nothing to worry about. She showed me the exercises to do, gave me the resistance bands for them, and I'll see her again in two weeks!

She even said I can go back to the gym (very carefully of course!), and said a few minutes a few times a week on an exercise bike with low to no resistance would be good for my ankle, as long as it doesn't cause me any pain. So that's exciting. My trans gym class doesn't start up again until next week so I'm looking forward to doing a super-careful version of it then.

I'm glad I didn't really miss much in practical terms from not starting this a month ago. But I do wish it had happened for the sake of my mental state; I've been feeling confused and abandoned to my own devices, which aren't very good! Having no experience with this kind of injury, and finding that I wasn't in pain at the time if I overdid it but only that night when I couldn't sleep at all meant that I was always conscious of the possibility of overdoing it and setting myself back without knowing it at the time. But also I didn't want to be too driven by avoiding pain and fatigue because that would set my recovery back too. But without help I couldn't know which kinds of pain or fatigue to avoid and which to induce!

She also reminded me that ice and ibuprofen are still a good idea even trough I'm not in pain because I still have swelling (and to be fair sometimes even soreness) on the inside of my ankle where there's a ligament the surgeon didn't fix because he said it doesn't make a difference to people's recovery. So I did both of those things yesterday evening too.

So I'm feeling so much better now, mentally. Physically, I was totally exhausted by the longest trip out I've made since I broke my ankle (which is why this entry is going up late). Just talking to someone I don't live with felt new! It made me laugh just how much D and I were caught up in our own in-jokes and references and stuff; listening to us and imagining what we must sound like to strangers in the physio department was so funny to me. I am just not suitable for human company these days.

I came home and barely got through the rest of the work day, when it was done I immediately went to bed and slept so hard afterwards that when D woke me up to tell me dinner was ready I didn't even know where I was or what day it was.

I would be getting my foot out of foot jail, and being able to officially stop the horrid blood-thinner injections (I cried again at last night's), this week if this week wasn't Christmas.

Instead, my appointment isn't until next Friday.

I was never doing as many of the injections as prescribed, at first because the prescribed information didn't match (I was literally told to stop it altogether everywhere except on the stickers on the boxes, i.e. the thing I can't read myself, and all my attempts to call and find out which is correct came to nothing) and then just because I had to balance this against my mental health. But when I saw the doctor to get my cast off, he confirmed it should have been twice a day all along and as a result I've stayed at once a day. Most days. Unless I'm too sleepy or I forget.

It's hard to keep my foot in foot jail all the time. Yesterday morning, I was so distracted and so sleep-deprived while I was getting ready and doing morning chores that twice I tried to go downstairs without putting the boot on. It has gone from "I don't need this for small amounts of walking" to "the inability to bend my foot is actually impeding my ability to walk around Tesco or walk the dog" or whatever.

Also I've been increasingly abandoning sections of the foot jail, heh.

It's a hard plastic shell on the back and sides of your leg, which a fabric liner that you velcro over the leg, a hard plastic cover for the top of your foot and shin (which we've been calling "the shin guard" even though that's a different thing), and then big velcro straps over all of this to hold everything together.

First to go for me was the shin guard, which provided very welcome support at first but eventually felt too constrictive and heavy. This also started what I'm now recognizing as a pattern of "I forgot this and then realized I'm better off without it."

Then last week I realized that the fabric over my toes sticks out behind the end of the hard plastic shell, and I found this out by being out in wet weather so my socks were immediately sodden and then my toes were wet and freezing cold until I could get home. Not a great design! I left the fabric to dry and put the boot on without it and again found it much lighter and mostly more comfortable (the hard plastic is sore underfoot if I walk at all, which I fixed by putting a slipper in the boot and that was fine until, again, I forgot about it when I went outside in the rain and it got wet)!

So the last couple days I feel like I'm just wearing the skeleton of the air cast boot, and I'm still finding that too much!

I'm very conscious of not wanting to walk or stand too much, not wanting to impede recovery, because I've had no physio input since I was given exercises to do right after I broke it. But there's been no guidance about how to behave now as it's healing. Which is understandable (the poor underfunded NHS!) but also frustrating.

And it makes waiting an extra week even more difficult.

[311/365]

Nov. 7th, 2023 09:29 pm

Gary is sad that I won't walk him and I am sad that I can't walk him and also that I can't explain to him why I can't walk him.

But! After his very busy morning at work, [personal profile] diffrentcolours offered to take me out in [personal profile] mother_bones's manual wheelchair for a short walk. After he got interested in all the noise and chaos surrounding the faff of getting me into the wheelchair (the house isn't step-free so it was outside and I had to get over the step), Gary wanted to come outside too.

So MB got him on his leash and D pushed me and all four of us went for a little walk! I got to hold Gary's l leash for a bit and I was so happy to see him peeing on and sniffing his usual things that my heart grew three sizes.

Then Gary and MB went inside and D took me for a longer trundle to look at some trees and grass. I got rained on. I was so happy to be outside. But so sad that this is a big and rare event now.

#

My mental health continues to be at a low ebb. After my GP surgery was its usual amount of unhelpful in getting me some short-term anxiety meds, I called 111 which took literally all day but got me a prescription that D could pick up just before the pharmacy closed half an hour ago (at 9pm).

#

It's so hard to watch both of the others overstretch themselves and not be able to do anything about it. It's so hard to watch Gary fail to understand why I'm not doing my normal stuff, and even being reactive to me coming into a room where he is on crutches, because I don't look right or sound right to him.

#

I know things will get better. But it's hard to know how to get through all the time until they are.

#

I need more activities I can do when I'm not working, too. Work is helping absorb/distract me, so I need stuff that does that the rest of the time. I might even have to go back to Duolingo! (I fell out of the habit again when I was in the U.S., where I was busy and/or exhausted all the time and low on internet.) I should ask MB which of her art supplies I can use. And I want to see what stretches and gentle exercise I can do while sitting/lying down, because it's so uncomfortable to be in a body that I can't move like I usually do.

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the cosmolinguist

August 2025

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