(I'm going by date rather than number of posts I've written; I didn't do one yesterday.)
When I asked for suggestions of things to write about,
marjorie_bark said she looked up the UN's International action days in December, which I think is a fantastic way of looking for topics! The two that she said I could probably come up with something to write abouit are two of the topics I feel I go on about the most, but she was confident I can find something to say. Today is the first: today is the International Day of Persons with Disabilities.
Rather than just talk about about being a disabled person* again, I looked up a bit of information about how the UN commemorates the day. Wikipedia tells me that it started when the UN declared 1981 to be "
The Year of Disabled Persons," which amuses me because that's the year I was born, a totally blind baby.
The slogan of IYDP was "a wheelchair in every home", defined as the right of persons with disabilities to take part fully in the life and development of their societies, enjoy living conditions equal to those of other citizens, and have an equal share in improved conditions resulting from socio-economic development.
A Wheelchair in Every Home! I love that. It makes a great slogan because it'll catch people off guard a little: hopefully making them think about things like "Why would there be a wheelchair in
my home?" and ponder how inaccessible most of our lives and routines are, and that none of us are guaranteed to be "safe" from disability. Indeed there are theories that some of the animosity and disabling reactions we face from individual members of society stem from their internalized fear of becoming disabled themselves. The answer to why there might be a wheelchair in one's home is going to be extremely uncomfortable for a lot of people, and I am sure that's as true now as it was in 1981.
Apparently a major outcome of the International Year of Disabled Persons was the formulation of the World Programme of Action Concerning Disabled Persons adopted by the UN General Assembly in December 1982, and this not only was a precursor to the current Convention on the Rights of Disabled Persons but also kicked of an International
Decade of Disabled Persons, from 1983 to 1993.
It's becuase of that Convention, to which the UK has been a signatory since 2007, that the UN was able to make the criticisms that got
some press lately, about how disabled people's human rights are being violated by the way the UK government is treating us. It's nothing that any disabled person didn't already know, but it's important to have this recognized officially by prestigious organizations like the UN too because disabled people are often hugely disempowered and disprivileged.
While I like the slogan of the first International Day of etc.etc. (part of the reason I don't like person-first language is it just seems so much more cumbersome to write out!), I must admit I found the
the list of the last two decades' themes pretty uninspiring. Lots about technology, inclusion, empowerment, breaking down barriers...lots of jargon about development and sustainable goals. It is in the nature of organizations like the UN to be vague and maybe kinda dry on these things, but sheesh. This year's theme is "Empowering persons with disabilities and ensuring inclusiveness and equality" which is literally just a remix of words that have appeared in previous years.
Interestingly (to me, anyway) I also learned from Wikipedia that Ian Dury was not a fan of this Day of Disabled People from the beginning, and his song "Spasticus Autisticus" was a direct comment on it (his "public response to a public gesture" according to a PDF I found in this wikihole I ended up in); he thought the day was "patronising" and "crashingly insensitive." The BBC apparently banned the song...but, oddly,
only until a 6 p.m. watershed, a decision which itself irked Dury. His record label subsequently sought to strike a defiant as well as sophisticated note regarding the record’s failure to chart, releasing a statement which said: ‘Just as nobody bans handicapped people – just makes it difficult for them to function as normal people – so “Spasticus Autisticus” was not banned, it was just made impossible to function.**
The idea that "Spasticus," a sweary song that seems to combine all the awful things a person might have shouted at them in a lifetime of being disabled (as Ian Dury, who'd had polio, experienced first-hand), wasn't worth banning altogether but only until after a watershed sends the message that disability is something unsightly, or at least that disabled people being anything other than lamenting or nobly suffering is unsightly. Dury called this song a "war-cry" and sounded quite proud of it getting banned and that "people got offended by it – everybody except the spastics." This kind of reclamation, familiar to many marginalized groups, can be so powerful.
It seems to me like the social model of disability sticking its head above the parapet and being knocked down by the prevailing medical model which says disabled people are a medical problem to be fixed and a tragedy that other members of society can safely consider themselves helpless to ameliorate -- thereby convienently absolving themselves of any responsibility to make even the tiniest improvements for disabled people.
Anyway, I've just caught myself using "thereby" and there are a ton of footnotes piling up underneath here (I did warn you guys I'd be writing this in between essays, I guess!) so I think that's enough out of me.
Again: please suggest a topic for me to write about in December Days if you like! Still plenty of days left.
* I prefer "disabled person" to "person with disabilities," but opinions on identity-first ("disabled person," "blind person," etc.) vs. person first ("person with disabilites," "person with visual impairment," etc.) vary from one country to another as well as from one condition to another: for instance, person-first language is standard in the U.S. but even there, autistic people seem to strongly prefer "autistic person" to "person with autism," to the point where the latter is sort of a shibboleth that tells clued-up autistic people that the speaker probably has ableist, mistaken or otherwise hostile views on autism.
** I'd hasten to add that we've (more or less!) moved on a lot from the dichotomy of handicapped vs. normal -- "handicapped" is now considered derogatory (in the UK; it startles me to hear it from Americans but there it's still used to describe toilets and parking spaces and similar things called either "disabled" or "accessible" in the UK), and we're better not about not defining marginalized people as distinct from "normal" people but instead from abled people, cis people, neurotypical people, straight people, white people, Christians, etc.***
*** I'm still on the lookout for a good word of this sort for non-immgrant that isn't "native" because native cannot now be separated from its connotations with indigenous people in North America...but that's a topic outside the scope of this piece! It's important to make that distinction, though: between "common" and "normal."