in today's episode of Oh Yeah I Remember Now Why I've Avoided This My Whole Adult Life....

[cosmolinguist]

My "Support Plan" from the sensory team arrived in the mail today.

My surname is STILL spelled wrong, even after I've tried about three times to get it changed (and I have gotten my e-mail address finally fixed, which contains the correct spelling of my name...). My date of birth is wrong, interestingly; that was new to me.

And it just went downhill from there, really. Stuff I can do it says I never do. Stuff I can't do it says I have no difficulty with. Pages and pages of reading about myself in the third person and not recognizing who they're talking about. Which happened to me all the time in school, and which led me to just throw the bundle of papers down on the table.

Yes, it's nice that now that I'm not in school I can fix this. I'm still getting used to being listened to and taken seriously for anything to do with my eyes, because that just never happened in my endless specialist appointments at the Mayo Clinic and my IEP meetings at school with my parents and teachers and the visual-impairment caseworkers. So yes, it's good to know I can fix this and hopefully things will get straightened out. But just thinking of how much work it'll be to do this -- seriously, I started off just adding corrections but I think I might have to re-write this whole document -- makes me tired and sad.

It'll be a struggle not to just curl up and ignore this, and probably everything, the rest of today.

Oh well. I was about to make cheese on toast when the post arrived, because I haven't eaten anything yet today. I suppose I'll go make myself that, even though cooking is on the list of things I can't do for myself.

Comments

[mother_bones]

Well I would like say I'm shocked but can't. Bloody hell though, I am annoyed for you!

[sfred]

Argh :-(

[haggis]

That's horrifying. Even if it is just due to carelessness, it is a huge disappointment and a breach of trust that their information is so inaccurate. How can you rely on them for anything else?

[cosmolinguist]

I know the person who did it and it is just carelessness/misunderstanding/me not explaining myself well enough. But yes.

[syntaxofthings]

*groans* that is a "I can't even" moment.

[cosmolinguist]

Yep. Soooo not dealing with this today.

And tomorrow I am going to see magister and we're going to drink beer and he's going to buy me nice food, oh noes!

So yeah. Maybe by Friday I'll be able to tackle this.

[syntaxofthings]

I approve of not dealing with it yet.

[magister]

Well that sounds unacceptably shit. Can provide distraction tomorrow if you like.

[cosmolinguist]

I would like, thank you. :)

[silveradept]

Wow, so much concentrated wrong. I hope it takes zero effort to untangle and the untangle sticks.

[barakta]

Argh. Rewriting can be a good way of minimising exposure to fail but i wonder if playing the "so many details are wrong, is this my report?" Game might work....

I'm lucky most of my reports are largely accurate and i think I'd want to make at least a mild very British complaint if they weren't as they are professionals who shouldn't be mixing me up with other people or using lazy copy paste report writing...

Good luck fixing and sending corrections back!

[catlinye-maker.livejournal.com]

A lot of systems use birthdate with name as a confirmation of identity. FWIW (free advice on the internet...) I'd definitely tell them they sent the wrong report based on that.

[cosmolinguist]

Heh, I like that angle. :)

[cosmolinguist]

I think this does boil down to just copy-paste and a bit of ticking-the-wrong-box. The woman who did the assessment this is based on is super-nice and we get along well in person. So I don't want to be mean (especially because she's doing my guide cane training to so I'll be working with her a lot more) but at the same time, some of this stuff they've got wrong about me really really needs to not be wrong (like that I'm not interested in working or volunteering!).

As well as this, what was supposed to be a straightforward visit to see about getting the light in the basement fixed turned into an hour of me trying to answer questions from people who should've been talking to each other instead of me but they weren't here at the same time like they were supposed to be.

So I am pretty tired of disability service provision people all round, today. I'm utterly knackered now and definitely need to find something undemanding to do!

[barakta]

*nods*

It is very frustrating when disorganised services cost you more spoons than they ought to while knowing they might give you more spoons or strategies for spoons management later...

I have a whole rant about the trauma of making people retell their narrative repeatedly to different humans who don't share info when they ought and why joined up services with a single point of contact would be so much more ideal but just doesn't exist in reality.

Good luck about sorting the mistakes and not getting too exhausted by it. If I can be of any use, LMK.

[cosmolinguist]

Thanks.

I think you might already have been of use, because if I'm right there are bits of the answers we worked on for my PIP form that I can use/start from here, which saves me having to think the answers up again.