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Happy Nystagmus Awareness Day. I wrote a kind of FAQ about nystagmus a while ago.
I had to explain the basics of what nystagmus is to the assessor who did my PIP assessment the other day. (They used to at least tell you they were a physio or a nurse or whatever, now they don't even bother letting on how unqualified they are to be assessing your particular condition.)
Oh speaking of, I got a phone call today, from an 800 number I'd been ignoring for a few days because it never left a message or anything. I mostly answered it by accident today. And it turned out to be from Maximus or whichever shitty entity the DWP have outsourced their assessments to in my region, saying they need more information from me so now I have to talk to them on the phone on Monday! Ugh. I've never had this happen before.
Got a text this morning saying that I need to book a blood test before I get more meds too. Ugh! More needles and more lectures about being fat. Not a fun day for admin relating to having a body!
(no subject)
Date: 2025-06-20 09:35 pm (UTC)(no subject)
Date: 2025-06-22 09:43 am (UTC):hugs:
(no subject)
Date: 2025-06-21 03:24 pm (UTC)Health work is so much work.
I’m looking forward to the tipping point when the folks who grew up with mobiles and texting are in charge of admin processes. No more long annoying phone calls, I hope.
(no subject)
Date: 2025-06-22 09:46 am (UTC)I'm suspicious of this phone call because my previous assessment was done by phone. So I reckon I could be getting anything from "can you email us a copy of $document?" to a whole nother assessment tomorrow. At the end of my work day too!
We'll see.
(no subject)
Date: 2025-06-24 04:58 pm (UTC)Just worked out the dates, hoping PIP conv went OK yesterday and not too much bullshit (it's all bullshit I know). Sending love and spoons for it.
(no subject)
Date: 2025-06-24 07:29 pm (UTC)It was so extremely bullshit. Writing an entry about this now.
(no subject)
Date: 2025-06-21 05:41 pm (UTC)(no subject)
Date: 2025-06-22 09:47 am (UTC)That does seem to be the theme here, doesn't it...