What an informative and useful essay. Although I'm typically sighted, I develop nystagmus when fatigued. It's really confusing.
The thing that boggles me the most is the huge gap between the medical and social models. We criticize the medical model for not recognizing how society disables us, but it's also crap because the medicos don't provide us with helpful info. The business of living, coping, getting on with it is the most important, and mostly that seems to happen peer to peer.
Although now I hope that kids are getting some of that support when they're young. It's infuriating that anyone can grow up with the message, "Well, you're almost able-bodied, so we can ignore your need for accommodation." But it certainly has happened to many people I know in my generation (the younger baby boomers).
Are you eligible for access to alternate formats? (Audio, computer text?)
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The thing that boggles me the most is the huge gap between the medical and social models. We criticize the medical model for not recognizing how society disables us, but it's also crap because the medicos don't provide us with helpful info. The business of living, coping, getting on with it is the most important, and mostly that seems to happen peer to peer.
Although now I hope that kids are getting some of that support when they're young. It's infuriating that anyone can grow up with the message, "Well, you're almost able-bodied, so we can ignore your need for accommodation." But it certainly has happened to many people I know in my generation (the younger baby boomers).
Are you eligible for access to alternate formats? (Audio, computer text?)